I was diagnosed with Lymphangioleiomyomatosis (LAM) on Friday April 13th, 2018. In the months leading up to my diagnosis one year anniversary (LAMiversary), I had an urge to share my story and experiences. My goals for this blog are to:
- Raise Awareness – It is a rare disease and the more people that know about it the better.
- Tell My Story – My story is different, just like everyone else’s. My hope is that in sharing my story you will find comfort and assurance that you are not alone and that support exists.
- Share Information – I was only diagnosed one year ago but, in that time I have had the opportunity to get connected with amazing women (affectionately we refer to ourselves as Lammies), doctors, and support groups. I plan to share what I know and/or believe to be true.
LAM is a rare disease and inherently Lammies can feel isolated and alone, especially when first diagnosed. To my fellow Lammies – you are not alone. Hopefully my story gives you hope in that though times will not always be easy, you can live a full life with LAM.